My husband and I have just returned from a trip to Aruba. You would think, “Hey, that’s great! Sounds wonderful!” But living with a chronic illness, travel can
be tedious. I was feeling a little bit
anxious about traveling while at the same time I kept thinking, “This is
vacation. This is supposed to be
fun!” Living with a chronic illness, you
learn more about yourself than you did before you were sick. I’ve learned to ask myself the question, “Why
do I feel anxious about traveling to an awesome vacation?” The answer came quite clear to me. Because, living with AS can be exhausting in
the day-to-day tasks in life. For
example, some days I need to rest after taking a shower. So, thinking about
traveling can be overwhelming to me.
That makes sense. Asking myself
these types of questions helps me to process and understand my feelings. I’d like to share with you what was troubling
me about travel.
Packing: Packing is harder for me these days
because I like to pack items in case I get a flare, like a heating pad, my
favorite teas, puzzle books and reading materials. Then, there’s my medications. Sometimes it feels like I need a separate piece
of luggage just for my medications. I
don’t take too many meds daily. But, I need to pack a lot of different medications
in case I get a flare while away from home.
The Obstacle Course: I feel like traveling through airports these
days is an obstacle course. We take the
car to the off-site parking lot, take the shuttle to the terminal, check in, check
our luggage, go through security, and finally, get to the gate. Once at the gate, I feel like the obstacle
course is completed! The whole process
can be exhausting for me.
The Airplane: It’s difficult for me to be squished in an
airplane seat for an extended amount of time.
When the flight is over, I don’t know how well I’ll move being that I’ve
been sitting in a small, tight, uncomfortable seat for several hours. I’ll
either have moderate stiffness or major stiffness. I just never know.
Here are some tips I picked up for
traveling with a chronic illness:
1. Pack early: I started to set aside items for my vacation
about a week before my trip. I looked
over all my medications and discovered I needed to refill one of them. It’s good to do this early in case you need your
doctor to call in a refill.
2. Plan days of rest: I planned two quiet days before my trip. I slowly completed last minute tasks to get
ready for travel, so I didn’t feel overwhelmed.
3. Bring healthy snacks: I really don’t like airport food. I like knowing that I have my own healthy
snacks that will make me feel good as I travel. Also, bring an empty water
bottle. Most airports have water bottle
filling stations. It’s important to stay
hydrated while traveling.
I had a wonderful time visiting Aruba.
Thankfully, I didn’t have a flare.
The weather was beautiful. My
husband and I enjoyed walking most days of our vacation. The obstacle course scenario which I
described above was quiet interesting leaving Aruba. There was a checkpoint, Aruba customs and
security, US customs and security before finally getting to our gate. I needed to sit down after all that removing
shoes, electronics etc. during both security points. But, once we landed back in the USA, we didn’t
have to go through customs. We picked up
our luggage and out the door we went. It was a lovely vacation!
Finally, thank you for reading my blog.
During the month of May, my goal was to post weekly about living with
spondylitis in recognition of SpA Awareness Month. It’s been great! Moving forward, I will continue to post to my
blog twice a month…unless a pressing issue comes along that I want to write
about. Please share your comments with
me as I would love to hear your feedback.
As a final push for SpA month and to spread awareness, if you are
comfortable, please share this blog on Facebook or retweet on Twitter. I would greatly appreciate it!
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